That's the reason why the teen and her parents have joined four other plaintiffs in a lawsuit that aims to legalise medical marijuana at the federal level.
The young girl says she would like to visit her grandparents without fear of getting busted with cannabis oil and sent to a foster family somewhere deep in the heart of Texas.
However, the current marijuana laws keep her from traveling anywhere while carrying the drug, and especially from going back to Texas.
Since the 1970s, marijuana has been classified as a Schedule One drug in Texas, ranking it alongside heroin.
"She's a little kid that survived big-world knocks and is still standing", Dean Bortell said.
"How is that rationale? It's just outrageous", he said.
A complaint filed in the U.S. District Court in the Southern District of NY in July says that Alexis ran the gamut of prescription pills, all of which failed to control her seizures before she was left with two options: brain surgery or cannabis.
"When you look at it from a distance, and you see it saving their lives, me as a father and an American, I go, what are we doing?" Schedule I drugs "have a high potential for abuse and the potential to create severe psychological and/or physical dependence", a descriptor that appears to apply less and less to marijuana as more research is performed.
Alexis, whose family moved to Colorado from Texas to take advantage of the state's legalization of recreational and medical marijuana, had been suffering since she was 7 from a form of epilepsy that can not be safely controlled with FDA-approved treatments and procedures, the lawsuit says.
"Whenever you sue the government, the deck is really stacked against you", he said.
Marijuana now sits in the most restrictive category according to the Controlled Substance Act - Schedule I. This places marijuana in the same boat as heroin, which significantly limits the amount of medical cannabis research that can be conducted.
"This lawsuit stands to benefit tens of millions of Americans who require, but are unable to safely obtain, Cannabis for the treatment of their illnesses, diseases and medical conditions", the suit states.
Another pediatrician suggested medical marijuana, an option only available to them if they left their home state.
The Bortell's packed up and headed for Lakspur, where they started using a strain of cannabis oil called Haleigh's Hope, KDVR reported. Two drops of THC per day kept the seizures at bay. She's been seizure free for more than two years using this method.
"I'd say it's a lot better than brain surgery", Alexis said.